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#pcrocks at the CANFIELD FAIR


Sunday, May 7, 2017 - Cycle for a CURE

It was a fantastic SUNDAY morning at the Canfield Fairgrounds where we hosted our 4th CYCLE for a CURE.  The second at the fairgrounds.

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Tuesday, November 22, 2016 - Pure (so very) THANKFUL 

A Pure Tradition a 90 Minute Class of REFLECTION and INSPIRATION with Missy.  Donations going to MAKING KIDS COUNT.  

The class was packed and our riders as always were very generous.

We were able to help with 100 Comfort Kits going to Trumbull County Services.

 

Friday, October 28, 2016 - What's Your Story - Amy Romine

Today we talk to Amy Romine, in the first part of What’s Your Story?

What brought YOU to Pure Cycle?

I started at Pure Cycle on Jan 5, 2016.  I was uncomfortable in my own skin due to weight gain.  I knew I I needed to make a change physically to regain confidence and to physically feel better.  I was never into physical fitness, but I had heard that spinning classes were very effective in "melting" away fat.  I'm glad I tried it!  

What do you remember about YOUR first class at Pure Cycle?  (the instructor, the setup, the people…)

My very first class was 4:30 with Theresa Nadasky and it was packed out!  I remember sitting in the last row and feeling very intimidated, but I told myself "get on that bike and don't stop peddling for 45 mins!"  Theresa was very helpful and encouraging.  I told myself I was not going to stop!  

Was YOUR first class like YOU thought it would be?

The first class and first few weeks were very hard for me, but I stuck with it!  Eventually I got better and better.  Then I started seeing huge results!  Then it became addictive!

Is there anything Pure CYCLE can do to make a first experience better?

All the instructors at Pure Cycle are very knowledgeable and helpful in setting you up on the bike.  I asked a ton of questions at first.  Everyone is friendly and very patient.

Do YOU have any advice for someone thinking about coming to Pure CYCLE?  Whatever your fitness goals are, give Pure Cycle a try!  It is an intensive cardio workout like none other!  All the instructors push you to your limits, but also tell you to "make it your own" since everyone is at different experience levels!  Whatever the outcome, you will walk away from class feeling motivated and probably gaining a few new friends too!  Check it out!  Each and every time I walk through that door, I am never disappointed!


 

Friday, October 21, 2016 - QUEEN of HEARTS - 50/50 RAFFLE

QUEEN OF PURPLE HEARTS 50/50 RAFFLE

Drawing held Friday - November 18th, 2016 at 8PM

Tickets $5.00 EACH

There will be 10 WINNERS that split the winner payout per schedule!

Every non-drawn ticket STAYS IN the drawing until the 10th winner is drawn! 

All tickets will be drawn at 8PM after the final ride.

If your ticket is drawn and YOU are present, you will pick LIVE one of the available cards.

If your ticket is drawn and you are NOT present, your card is picked at random.

Winner Payout Schedule

Ticket sales exceed

Winners minimum payout

(4 Total) Ace Pays

(2 total) Joker Pays

(3 Total) Non Queen of Purple Hearts Pays

QUEEN OF PURPLE HEARTS

$500

$250

$5

$10

$20

$150

$750

$375

$10

$15

$20

$245

$1,000

$500

$15

$20

$25

$325

$1,250

$625

$20

$25

$30

$405

$1,500

$750

$25

$30

$35

$485

$1,750

$875

$25

$30

$35

$610

$2,000

$1,000

$25

$30

$35

$735

$2,250

$1,125

$25

$30

$35

$860

$2,500

$1,250

$25

$30

$35

$985

$3,000

$1,500

$35

$40

$50

$1,130

$3,500

$1,750

$40

$45

$50

$1,350

 
 

Saturday, October 1, 2016 - Pure BINGO

Thursday, May 19, 2016 - Ohio Buckeye Breakaway - How Each Dollar is Spent

Professional Education - Focuses on healthcare professionals and allied health organizations. Our activities are designed to improve the knowledge, skills and critical judgment of physicians, dentists, nurses and other health professionals engaged (directly or indirectly) in the health field. This includes up to the minute reporting of new medical advancements and diagnostic techniques thru outreach and one-on-one visits to healthcare professionals as well as in-services and visits to long term care and rehabilitation services.

Management/General – Costs not associated with programs and fundraising, but necessary in managing the overall affairs of the chapter. These activities include budgeting and forecasting, HR functions including staff development, staff seminars and professional development. Finance, administration, legal and risk management as well as activities of the Board, Executive, Finance & Audit Committees not related to program activities, advocacy or research are also included here.

Community Programs – Are developed for networking and collaborating with other community organizations and individuals that have an impact on the MS population. These services either directly or indirectly benefit the community. Advocacy and government relations including public policy efforts and collaborations with affiliated health organizations are an important part of this activity. We advocate for our clients by engaging additional community resources while maintaining relationships with MS Clinics. We also perform needs assessments in communities and work to provide our clients with the community resources they need.

Fundraising – Activities and expenses that encourage donor participation in either traditional fundraising or special events. Costs include day of event staff support, media support, fundraising materials as well as development of sponsorship and grant proposals. Also includes costs associated with recruiting and retaining of event volunteers.

Public Education – We fund and conduct programs for the purpose of informing and alerting the general public about MS and its various manifestations. This awareness building also includes the printing and distribution of printed materials to the general public as well as the preparation of news releases and articles for newspaper, television and radio. We promote MS Awareness Week and participate in health and community fairs and speak to civic groups, church groups and attend health exhibits and public symposiums.

Research - The Chapter funds research based on our revenue including donations restricted to research. That amount is aggregated along with the funds raised from the entire organization. A vetting process coordinated by the Chief Research Officer of the Society is used to determine what projects are funded. This process insures that the investment in research is well coordinated and maximizes the use of these funds.

Client Programs – These programs provide a wide variety services and provide physical, emotional, informational, or assistive device support for our clients. They include direct financial assistance, respite/homemaker services, accessibility modification, transportation services, durable medical equipment, health & wellness support and counseling. We also offer support groups  and educational programing. Case management and financial planning services are also offered by our chapter.

 

Tuesday, May 17, 2016 - Gretchen's Story

Gretchen was first diagnosed with multiple sclerosis in 2011, shortly after her daughter Gwen was born. Gretchen rode in the 2015 Cycle for a Cure and started working out regularly at Pure Cycle within the last year. She will be riding all five hours in this year’s Cycle for a Cure on May 22 at the Canfield Fairgrounds. Here is her story:

I was diagnosed at 30. I became ill and it took about a month and a half before I was officially diagnosed. My first initial symptoms were absolutely crazy. I woke up one morning with vertigo. It was the worst dizziness you could possibly imagine. I’m not sure that dizziness is the right word to describe it. I felt nauseated and I couldn’t walk without falling. It feels like everything is moving or spinning around you. I could not move. I had to lay in my bed and stay extremely still with my eyes closed. Even while doing that, I felt like I was still spinning. If I did move, I could not stop vomiting. I couldn’t stand without falling. I went to the hospital and they treated me for vertigo, and what they thought could be an ear infection.  

I experienced this for 12 to 14 hours. The following day, I was extremely fatigued and noticed other symptoms. My vision was blurry in my left eye, my legs were heavy, my feet were tingling and I could not write. After so many days, I would have vertigo again. It would take me another 12 to 14 hours, if not longer, for it to pass. Then for the next days and days to follow, I would have more symptoms. 

I went to my family doctor who told me I just had infection of some sort. He said that’s what was causing me to have all these problems. He didn't push for me to have testing done. I was unable to take care of my daughter and had to go to work. This went on for over a month.

One day, I had vertigo so bad and could not feel my whole left side. I made my mom take me to the emergency room where my family doctor practiced out of when he was on call. I was persistent and said that I was not leaving until I had some further testing done. How could somebody live like this with all these symptoms?

When I was admitted at Northside Hospital, I had several tests done to confirm the diagnosis of MS. I also had a second opinion at the Cleveland Clinic. Compared to others, I was very fortunate with my diagnosis in all honesty. My cousin's husband's mom worked for the head neurologist at Northside, who has since retired. When she saw my name on the list, she told him that he needed to get in there and help.

I have relapsing-remitting MS. During this relapse or flare, I experienced not being able to walk correctly. I had a drop foot and leg spasms. I had horrible facial pain and eye pain. I suffered from aphasia, which means my brain wasn’t able to find my words to express myself while speaking. I was also slurring my words. I had bowel and bladder issues. Muscle weakness. I couldn’t use my left side from the top of my head down to my feet and felt numb. I couldn’t write. The fatigue was overwhelming and I slept so much.

I was unable to properly care for my daughter and had to rely on my family for everything. I am a single mother and blessed with a great family and friends! My mother, father and two brothers are amazing. No one else in my family has multiple sclerosis. My dad has Crohn’s disease, which is also an autoimmune disease. There have been studies that show if someone in your family has an autoimmune disorder, you are more likely to develop one.

I have tried four different medications. The first three left me feeling like I had the flu for many days. I had many other side effects as well. I had to give myself shots and then take a pill. I'm currently on a medication that is called Tysabri, which is an immunotherapy infusion that I get every 28 days. Leading up to my treatment about a week before my infusion, I feel very weak and warn down and out of my body.

For my infusion, I drive to the Oak Clinic for Multiple Sclerosis in Uniontown, Ohio, a small town in Stark County. They are an amazing facility that only helps those with MS. They help individuals pay for their medications and care services. It’s ridiculous what some of these medications cost! I ride in in the Cycle for a Cure for many of the friends I have made at the Oak Clinic. 

My life has changed a lot. I have a special needs daughter, Gwen who is 6, that also requires special care. I stay strong for her. She is my inspiration! I have my good and bad days. I try to stay super active and stay positive! Motivating others around me makes me stronger. I still have symptoms, but I try to push through them and rest when needed.

I have been a part of Pure Cycle mostly this year. I rode in the Cycle for a Cure ride last year and made many friendships. I am so blessed to have this amazing group of ladies and gents who advocate for MS and my friends. They build me up and keep me strong!

Strong women build each other up and that's why I love Pure Cycle. Because they believe you can do anything if you work for it and try! 

 

Saturday, May 14, 2016

 What It Really Means to Do the Buckeye Breakaway

When Ashlee Thorne signed up for the Bike MS: Buckeye Breakaway last year, she didn’t know anyone close to her that had multiple sclerosis. She signed up for the fun and team camaraderie. And she was bullied a little by spinning instructor and team captain, Missy Schmitt. “Missy told me I had to ride 150 miles with her. So I said yes. Back then, the whole thing didn’t really have much of an effect on me.”

Until the last hill. The last hill riding into Brunswick, Ohio, at the end of the second day is brutal. It’s a straight incline on an unpaved road. It’s open to traffic and there are no sidewalks. It’s not the steepest, hardest hill, but after riding 147 miles over two days, it’s the Heartbreak Hill of the Buckeye Breakaway. Last year, a lot of riders were walking their bikes up the hill with cars passing on either side. Except the Pure Cycle team. No one got off their bikes. Not once the entire weekend.

Ashlee in particular had a challenging weekend. Just 38 miles in on the first day, she crossed over railroad tracks and couldn’t pedal. Her chain fell off and she couldn’t unclip her cycling shoes from the pedals. The derailleur on her bike, commonly referred to as the gears, had snapped off. Ashlee walked her bike to the top of the hill and called her sister Amanda to come pick her up.

But the team wasn’t going to let her quit. She finished out the day riding a teammate’s second bike while wearing tennis shoes she purchased from a store across the street. Amanda brought Ashlee’s tennis shoes and her own bike for Ashlee to ride the second day. Ashlee had to ride 112 miles not clipped in to the pedals like she was accustomed to. When you ride unclipped, you’re not able to pull up on the pedals. You’re only pushing down or “stomping” which tires your legs out quickly. Imagine doing nothing but stomps for 112 miles. Most of us whine when we stomp in Missy or Candace’s classes for a minute at a time.

By the end of the second day, Ashlee was badly sunburned. She struggled riding up that last hill on a bike that wasn’t hers and shoes that didn’t fit. At the crest of the hill was a red light. While waiting for the light to turn green, Ashlee tried to commiserate with a cyclist next to her.

“I’ll never forget when I got to the top of the last hill and I looked over to the guy next to me and told him I’d never been more thankful to see a red light. That was rough. He just looked me straight in the eye and said ‘Thanks for riding’ and he had an ‘I Ride With MS’ jersey on.”

In that moment she realized the significance of the Bike MS events and Pure Cycle’s Cycle for a Cure. That interaction inspired her to sign up for all five hours of the third annual Cycle for a Cure in May.  Not only that, she’s also riding the extra 25-mile “bonus loop” at this year’s Buckeye Breakaway to bring her totaling 175 miles that weekend. Ashlee said she was amazed at how positive and friendly everyone was at the BB. The whole weekend strangers were thanking her and the team for riding.

“It’s one of the most humbling things I’ve ever been a part of. It wasn’t just that one person in a jersey. It’s those people you ride by and that’s why you do it. Because if they’re out there and they’re able to do it, there’s no reason that I can’t be out there doing it.”

A big source of inspiration for the Pure Cycle team was Koreen Burrow. Koreen was diagnosed with MS at the age of 26. Over the last twenty years, Koreen and her husband, David Fox, have advocated for MS through Bike MS events. They’ll complete their goal of cycling in a Bike MS event in all 50 states next year in North Carolina. The inaugural Cycle for a Cure event was co-founded by David to help raise money for Koreen and their journey to fight MS. The focus has shifted to include all of those living with MS, rather than spotlighting one person. But David and Koreen continue to be active participants and guests of honor at each Cycle for a Cure.

At the Breakaway last year, Koreen was the one circling back to check on teammates who had fallen behind. Koreen was the one coaxing and pushing everyone up that last hill when they had no gas left in the tank. Missy who often tells us “you’re fine” in class, was hearing Koreen yelling that at her when Missy didn’t think she had anything left. “Talk about choking back your pride,” Missy said. Koreen and David won’t be riding with the Pure Cycle team in August because they’ll be riding in an event in Oregon as they close in on their 50-state goal.

You don’t have to be a superhuman to ride in a Bike MS event, Missy insists. While most of the team will be riding the full 150 miles, with the returning riders opting to do 175, you also have the option to ride 30, 75 or 100 miles. If you’re not able to make it the whole way, event volunteers will bring you back to the dorm. “You don’t have to be a bad ass on a bike,” Missy said. “You don’t have to be a road cyclist. You can have a basket or a bell on your bike and still do this ride.”

 

Thursday, May 12, 2016 - Rider Profile: Erin Barone

Before Erin Barone was diagnosed with multiple sclerosis in 2000, doctors spent years trying to determine why she couldn’t feel anything from the waist down and why her feet were tingling. At the time, MS was more difficult to diagnose. It could be a long waiting game as doctors make a definitive diagnosis by process of elimination. She grew increasingly frustrated as her doctors declared they knew what was wrong with her. They thought she had a pinched nerve. Or lupus. Or fibromyalgia. Or Crohn’s disease. Or allergies. Or maybe it’s a vitamin B12 deficiency. It took 10 years before she was officially diagnosed with MS at age 32.

Even today, there’s no single test that diagnoses MS. MS symptoms can be caused by other conditions and doctors need to run numerous tests to rule out all possible conditions, as in Erin’s case. Doctors also have to find evidence of damage in the central nervous system that occurred two different times at least a month apart. However, the use of MRIs as part of the diagnostic criteria has led doctors to make a more accurate and timely diagnosis.

According to the National Multiple Sclerosis Society, MS is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information between the brain and body. Damages to the myelin coating around the nerve fibers and the nerve fibers themselves interferes with signal transmission between the brain, spinal cord and body. Think of an extension cord with the coating on the cord stripped away. The wires are exposed and frayed. It doesn’t work as well as it used to, if at all.

MS is often called the snowflake disease because no two cases are alike. MS presents differently in each patient. In Erin’s case, she has remitting-relapsing MS that affects her mobility. Erin’s younger sister, who was diagnosed six years ago, has problems with her vision. With remitting-relapsing MS, Erin has clearly defined attacks or relapses of symptoms. There’s no way to tell how long a relapse will last. During remission, symptoms may completely or partially go away. With partial recovery, the nerve damage can’t be completely undone and becomes a permanent part of the disease.

To manage her MS, Erin is injected with an immunosuppressant shot every other week. She was told the shot may cause flu-like symptoms, so she wasn’t prepared for the intensity of the side effects. “It kicks my ass,” she said. “And I have a huge threshold for pain. Knocks me down for 48 hours. The last [shot] knocked me down for three days. Sometimes it doesn’t bother me at all.”

Her last relapse was two years ago and lasted about a year. Relapses can be triggered by stress. At the time her son had left for the Army, her older sister recently died and her younger sister was newly diagnosed with MS. She worked at the mall and as she was walking around the mall, she freezed up. When she went in for her first MRI after relapsing, the doctors found a nine-millimeter lesion on the base of her spine. Lesions form when the myelin coating on the nerve fibers become damaged by disease activity. The lesion, or plaque, becomes inflamed causing communication problems between the nerves. This lesion was the size of a pencil eraser. It’s the largest one she’s ever had.

Shortly after she was diagnosed, Erin participated in the first MS Challenge Walk in southern California, where she was living at the time. Each participant must raise $1500 to participate in the three-day, 50-mile walk. She heard about it on the radio and asked her friends to do it with her. At the time, she had told a handful of people that she had been diagnosed. At the walk, she spoke in front of hundreds of people as the first guest speaker. “Doing that walk, that was the first time people really got me,” Erin said. Like people in the same situation. I wasn’t alone. That’s kind of how you feel when nobody knows what it’s like.”

Including the first walk, Erin has participated in 13 Challenge Walks and other MS fundraising events. This year she has signed up to ride Cycle for a Cure and joined Pure Cycle’s team for the first day of the Bike MS: Buckeye Breakaway. Cycle for a Cure falls on the Sunday of a shot weekend (her toughest day), so her daughter will be riding in her place. She plans to attend, no matter how she’s feeling, to serve as a featured speaker.

Jeff, her husband of 28 years, rode all six hours of Cycle for a Cure last year and has participated in numerous Bike MS events. She volunteered for previous Bike MS events, but this is the first year she will be riding in one. She’s only riding on Saturday because the Buckeye Breakaway also falls on one of her shot weekends. But she’s hoping to cheer the team on as they cross the finish line in Brunswick, Ohio.

If you’re feeling sorry for Erin right now, don’t. She doesn’t want any part of it. She doesn’t want to a pity party. She sees as something that happened to her because she’s a strong enough person to cope with it. When she was diagnosed, she was relieved that she finally had a label to put with the problem. “I didn’t really think of it like ‘Why me?’, I looked at it as ‘Why not me?’”

 

Wednesday, December 9, 2015

Brian's Story

You asked for some info on how I got involved in the Pan Ohio Hope Ride. A father of a good friend of mine passed away from cancer in 2009 or 2010. His brother heard about this ride and entered, but just for 2 days. He felt compelled to ask his brother the next year due to the positive experience he had. They had one more join them that year. The way I got involved was I was asked to donate, which I did. After my friend rode, he shared his experience with me and said how good he felt to be able to ride in honor of his father and now able to pay it forward in his name by helping others. He invited me to join but at first I turned it down as I didn’t even have a bike other than an old mountain bike. I haven’t rode since before I got my driver’s license. After thinking about it for awhile I decided I would give it a try, and as a benefit I would also get into shape during the training. The first year I bought a very cheap bike off of eBay. Well needless to say I loved being a part of Pan Ohio, what it stood for and being part of a group that is all riding for the same cause. After the first year I upgraded to a better bike and invited Bill to join my team. The following year I was able to have a co-worker join, as did Bill. Others on the team invited others and last year we were up to 22 team members, and as a team we raised over $63,000. The total number of riders reached as high as 550 two years ago. Each rider is asked to raise a minimum of $1000 to be able to enter the ride. What I love is there are people who join the ride from all walks of life and fitness levels. The organizers stress to everyone that this is not a race, just a ride. There is full support during the ride, where you have SAG vehicles (Support and Gear), follow the riders along the course, as well as a couple of ambulances, just in case of an injury. They also have water stops about every 15-20 miles where water and Gatorade are provided, as well as fruit, Clif bars, granola bars, etc. The volunteer usually decorate the stops with different themes and are very friendly and supportive. There is also a portable bike shop that will help with any bike repairs that may be needed. They will not leave any riders stranded out on the course, which is also very well marked, so it is not likely someone to get lost. Food is provided in the college cafeterias for breakfast and dinner, and lunch is catered at one of the stops in the middle of the day, usually at a large local park. The support is amazing and everyone is very helpful. If you break from your group it is easy just to tag along with another group. One of the things I like is they put your name on the bib that you have to wear, along with what city and state you are from. That way you can give and receive encouragement to other riders as you pass them and or get passed and use their first name, or strike up a conversation based on where they are from. It is just a neat experience and I would invite anyone to take a closer look and would love to answer any questions anyone would have about joining our team.

Below is some information about the ride itself along with a link to one of our riders on my team, Justin Jeffers, whose wife was diagnosed with a form of cancer. We also have another rider on our team who is a cancer survivor, and he is in his 20’s. There are at least 20 other riders who are cancer survivors as well. This is what makes this event such a great experience.

The ride is to benefit the Hope Lodges of the American Cancer Society. They are located in Cleveland and Cincinnati, which is the two end points of the ride. For the first 9 years the ride started in downtown Cleveland and ended in downtown Cincinnati. For 2016 the ride will be reversed, starting in Cincinnati and ending in Cleveland. The riders stay in college dorms, usually starting at Case Western Reserve, the College of Wooster, Otterbein University, and the last night at Wittenberg University. For 2016 of course this will be reversed. On Saturday night the rider are treated by a banquet where riders are awarded. They also provide chartered buses to take you to the start of the event, as well as take you home after the event to your starting point. They also load your bikes in Penske trucks so you don’t have to worry about transporting those. Each night your luggage is transported in these same trucks and delivered to your dorm room. Like I said the event is worry free, all you have to do is ride.

Also, as an added bonus, this ride has brought me to you, Pure Cycle, as I was looking for a way to keep in shape over winter. As a result I have helped with the other fundraising rides as well. It is neat how the different events has lead to each other and has now circled around.

Brian Martin

 

 

July 7, 2014

WE ARE IN OUR NEW LOCATION

4120 Boardman Canfield Road

Canfield, OH 44406

Next to Pizza Hut on 224 in Canfield.  Across from Westford.

 

JANUARY 21, 2014

ANNOUNCEMENT

CHARITY RIDE - MULTIPLE SCLEROSIS

SUNDAY, MARCH 30TH 2014

9AM - 3PM

GET YOUR TEAMS TOGETHER OR RIDE INDIVIDUALLY

DETAILS TO FOLLOW SOON!!!!

 

January 7, 2014 - ALL morning classes are CANCELLED due to the extreme weather!

January 6, 2014 - morning classes are CANCELLED

 

January 5, 2014

CANCELLATION POLICY

If Canfield Schools close or 2 hr delay ALL morning classes will be cancelled. 

In the event the delay hasn't occured by 5:30AM the 6AM class will be on.  If the delay happens prior to 5:30AM the 6AM is cancelled.

ALL afternoon classes will be on as scheduled. 

 

January 2, 2014

6AM CLASS IS CANCELLED TOMORROW - JANUARY 3RD

 

January 1, 2014

HAPPY NEW YEAR!

Achieve all your fitness goals at Pure Cycle in 2014

Join the Challenge - we are now promoters of Body by Vi 90 day challenge!!  Please call studio for information!  If you want to lose 5, 10, 20 plus pounds you MUST call for information!  Join the CHALLENGE!!!

Welcome to our newest instructor -  Scott Baird!  Scott has many years instructing under his belt!  His energy is contagious!  He will be teaching Thursdays at 7PM.  Schedule now!

 

November 18,2013

NEW CLASSES ADDED!!

Saturday 10AM

Tuesday and Thursday 7PM

 

November 2, 2013

WE ARE OPEN!  Stop in! 

Remember to mark your calendars for Nov 14th  - OFFICIAL ribbon cutting ceremony at 10:00 AM.  We will be there until 8PM.  Please stop in for a tour and refreshments!

 

Oct. 27, 2013

FINAL COUNTDOWN - The studio opens in 4 days!  The bikes will be delivered tomorrow!!!!  We are ready to ride!  Hope to see you Friday!

 

 

Oct. 14, 2013
Studio Painted!
 We have just completed the painting of the studio! 


Oct. 12, 2013
Reservation System.
 We hope to have our Reservation System up and ready for you to reserve your rides by the end of next week! 


Oct. 8, 2013
Welcome to our website.
 We will continually post the most current updates here, please check back often! The studio is currently being painted and we will be ready for the delivery of our bikes next week!